CHAPTER 1 - A Hard Way to Die

What if you discovered that all the plans you had made for the last years of your life – even for your funeral-were going to be completely changed without your permission. (Keep reading even if you have no plans. Especially if you have no plans.)

What if you found out that the people who you believed would take care of you in your dependent old age would instead be taking away everything you owned and controlled? What if you learned that you would be involuntarily taken from your home, placed in a facility and heavily medicated – despite all your wishes? What if you were told you would never see your home again, never see your friends and loved ones again? And there was nothing you or anyone else could do to stop it all? Such a thing might not happen to you but it could - and does -happen, even to smart, nice, contented people. Believe it or not - it is estimated that 90% of elder abuse is inflicted by family.

WHO

Most of us, if we live long enough, will become unable to take care of ourselves in some way, short or long term. When we are dependent, we become easy targets for abuse. There are many kinds – physical, mental, financial and material, sexual, psychological, abandonment, neglect, and serious loss of dignity and respect. And there are many sources – government, health and care facilities, caregivers, attorneys, physicians, police, and family members. Your children, your spouse or your siblings,could be hidden enemies. Helplessness, illness, pain, and death are all situations which we might face, at any age, and that we fear. We simply do not want to think about any of it. It’s no fun.

I was one of those. Until I experienced, in prolonged, horrified disbelief, the deadly abuse of my companion, Rob, by his daughter. Because I could not believe that such deliberate savagery could exist, it took too long for me to get help. Time ran out. He was a proud, independent man. He died after being temporarily ill and confused and was put into an institution by his daughter, who knew just how to get rid of him and did so in four months.

WHAT

I am not selling anything. Just the hope that people will realize the risk of dire consequences if they are without a good plan. A plan can be simple or all-inclusive, but there is real danger in not having a plan or having the wrong plan. Elder abuse, especially by family, is the most vicious kind of abuse – easily hidden, hard to fight and almost impossible to stop.

This is true, especially when a facility and/or its employees are complicit in the abuse. I was accosted by a Sheriff's Deputy when visiting my companion who was in an assisted living facility, and I was banned from entering the facility for a year. Just for presenting a signed HIPPA document giving me access to his medical records.

WHY

Knowing what can happen and finding ways to prevent all elder abuse are vitally important. There is a common pattern noted in reports of abuse of elders. The abusers isolate their victims, medicate and/or mentally manipulate them so that they can’t or won’t speak up or fight back. The abusers can also control their medications. They see that the victim dies quickly then immediately have them cremated to remove any evidence of foul play. You will see this pattern in Rob’s story.

You must realize how frequent, devastating and deadly elder abuse can be, and learn the possible reasons why it happens. There is much information out there about planning the end of life, or the end of independence, or just survival if temporarily ill or disabled. My hope is to clarify, illustrate and simplify a complex and unpopular topic. Advance planning, or just awareness, can address the fears and worries that may linger in our minds. It can also reduce the possibility, for you and your loved ones, of being trapped in an unbearable situation - or of premature death.

That is why I am telling Rob’s story. Having failed to save him I hope to save someone else – by exposing the ugly truth. If it is known, it can be avoided. It is not a pretty story and is hard to tell. That is why I set  about making my plan for how I want to live out my life. And I swore I would spend the rest of my life trying to persuade others to do the same.

✔An easy way to start a plan: The Five Wishes program, by Aging With Dignity, has a simple questionnaire about end-of-life decisions.

Rob wearing a black jacket is standing in front of a white fence.
May 6, 2025
I discovered the shock of elder abuse by family the second hardest way. I also found out about the wrong kind of planning, or rather wrong planning and bad people. I watched, unaware, as a daughter and her family planned and carried out the murder of her father. It is an extreme example, but not rare. It happened because I did not know, and could not imagine, that a crime so hideous ever existed. The evil and horror is seared into my soul.
A rainbow is visible over a body of water.
May 6, 2025
There were some signs that my friend Rob might suffer abuse by his family. When we met, he had his life in very good order. He had a few common old-age problems – some arthritis, hearing, and memory loss – but none of it slowed him down much. He watched his diet, walked at least a mile each day and was never sick with even a cold. He mentioned that he had had several major surgeries in years past and that his daughter, Dotty, had helped him.
A woman is covering her face with her hands in front of a house.
May 6, 2025
When we met, Rob had his life in very good order. He had some common old-age problems - arthritis and some hearing loss - but none of it slowed him down much; he had a strong constitution. He watched his diet, walked at least a mile every day, and was seldom sick with even a cold. He mentioned that he had several major surgeries in past years and that Dotty, his daughter, had helped him after his wife died. He took one prescription medicine -for high cholesterol.
A black and white photo of a person standing on a beach at sunset.
May 6, 2025
After much trial and error in the treatment of Rob’s problems from long-ago radiation for prostate cancer, he underwent surgery for a permanent catheter. He handled it well, making the necessary adjustments to his routine. Over the next year, there were a few problems with urinary tract infections – UTIs - which were easily treated with antibiotics and hydration.
Rob and Jane posing for a picture in front of a lake.
May 6, 2025
Rob was recovering from surgery and getting his strength back, but had occasional urinary tract infections. His daughter, Dotty, was handling his medical appointments and his medications. His infections were treated with antibiotics and hydration, but often caused confusion and disorientation.
Rob in a wheelchair is walking down a hospital hallway.
May 6, 2025
After three days in the hospital recovering from a severe infection, Rob was taken to a rehab facility by his daughter, Dotty - against his wishes. Almost everyone, if given a choice between returning to their home or going to stay in a facility, would choose home, although some might really need to go there before returning home. Rob did not need to go to a live-in rehab facility. Rob was not given a choice. He was walking, dressing, caring for himself and clear-headed at the time of his discharge from the hospital.
A statue of a bird stands on a dock overlooking a body of water.
May 6, 2025
This was the start. I watched, helpless, as my friend Rob was forced into a rehab facility by his daughter, when he could have gone home from the hospital after recovering from an infection. Most people want to stay at home, if possible, when they need care. He especially loved his home because he had created it. His home was on the water, with wide open views of water and sky. He had transformed the original 2-story townhouse into a huge open space with vistas from both floors and striking décor.
Rob wearing a white hat is sitting in a chair.
May 6, 2025
As Rob spent a month in a rehab facility, it became clear to me that Rob’s daughter, Dotty, did not want to help him. She actually wanted to harm him, but in secret. I found that elder abuse by family was not an abstract abomination; it was a real-life horror story and I was a broken-hearted witness.
A silhouette of a father and daughter standing under a tree.
May 6, 2025
Rob was in a Rehab facility for a month. He did not need to be there and I could not understand why Dotty, his daughter, forced him to go. He did tell her that he wanted to be at home and could have managed well, but did not put up much of a fight when she ignored him.
A patio with a table and chairs surrounded by flowers.
May 6, 2025
Daughter isolates him in a rehab facility, seizes his home and car, and forces him into assisted living against his wishes.
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